Emily ([info]pahsophist) wrote,
@ 2008-06-28 23:27:00
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Entry tags:autism, autism advocacy, autism speaks

Autism Speaks and the Neurodiversity Movement: Was This a Faux-Pas?
Some who are against the Neurodiversity Movement would say that the entire t-shirt fiasco was a faux-pas, an embarrassment for us perhaps and something we should regret.

Despite that I never like feeling foolish, despite that while I've tried to learn to take criticism well I can't pretend it doesn't wreck me, I don't think this experience was a mistake. Granted, myself and others made mistakes, especially earlier on. We assumed, based on Zazzle's word, that Autism Speaks had attempted to thwart neurodiversity free speech. In this instance, I cannot deny, we were thoroughly and utterly wrong.

But wasn't this just another opportunity for us, as a fledgling advocacy movement, to try our wings and spread them a little further?

As a movement, we are not only young in years but our membership tends to be younger as well. Young-to-middle-aged adults who are not especially experienced in advocacy and legal matters. As such, untrained, flying by the seat of our pants so to speak, it is inevitable that we make more mistakes than other older organizations and movements. Not to mention, as autistics, because socializing and cooperating are usually not our forte, it can make it all the more difficult to attempt to create a sense of solidarity amongst a group of such diverse (and sometimes stubborn) people.

What we have achieved so far, however, is immense, even if it is not keenly felt by the public and the media. Before the internet, there was no "autistic community" to speak of. Just since the 90's has an entire community been formed. In addition, while the gay rights and deaf rights groups certainly have had much to contend with and fight against, unlike us they didn't have organizations (such as Autism Speaks) who fought both FOR and AGAINST them. Therefore, while they were oppressed, they knew they were oppressed and didn't have to fight from WITHIN their ranks to be able to acquire the rights they deserved.

As verbal autistics, we are used by organizations like Autism Speaks to bolster the impression of the 1/150 "epidemic" in order to bring in more money. They dangle our numbers in front of the cameras, for the commercials, for the walks, for the senators and congressmen, and then quickly shove us back in the closet before we protest. At the very same time, somehow we're both included and excluded --go figure that one out; a little GW logic should do the trick. Therefore, when it comes down to it, we're being used without our permission: a violation in its basest sense. And this from an organization who, given their purpose, should know better.

So, my original point: Was this a mistake? Should we regret its occurrence? Should we wish that this whole Autism Speaks t-shirt incident never happened???

Answer: The best lesson learned is not from our successes but from our mistakes.




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[info]intralimina
2008-06-29 05:37 am UTC (link)
The assumption would not have been made if a precedent hadn't been set. That is, had Autism Speaks not set a precedent multiple times in the past for trying to silencing parodies of them, no one would have thought they were responsible this time around.

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[info]pahsophist
2008-06-29 07:19 am UTC (link)
Exactly.

Truth be told, because of their past record, I had been HOPING they'd instigated this because finally it would've been concrete proof of their actions, something we could've fought them with more easily.

But I'm sure something else will come up in future, something they're actually responsible for, hehe.

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[info]mercurygrrl
2008-06-29 10:22 am UTC (link)
I agree with the comment above, and would like to add that I think it's important that we "jump the gun" a bit and show that we cannot be rattled. That we will fight back, and that we care very much about our rights and what happens to our society.

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[info]pahsophist
2008-06-29 05:58 pm UTC (link)
Although at the same time of "jumping the gun", we don't want to act like angry militant nazis. (I won't mention names or forums, but there are definitely people who allow their anger to become destructive rather than constructive and it ends up hurting our own cause.)

We also don't want to jump the gun so that, precipitously, we falsely accuse anyone. That happened earlier on in all this, but I think we quickly learned to pull back and be better skeptics, to verify our information.

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From Zach
(Anonymous)
2008-07-01 12:27 am UTC (link)
I'm going to write a post about this as I feel its an important topic to discuss.

(Reply to this) (Thread)

Re: From Zach
[info]pahsophist
2008-07-01 12:37 am UTC (link)
Thanks.

Mind giving a link when you're finished? Would like to read it.

(Reply to this) (Parent)(Thread)

Re: From Zach
(Anonymous)
2008-07-01 06:45 am UTC (link)
Heres your link:
http://www.aspieweb.net/should-i-be-ashamed-of-the-autism-speaks-tshirt-ordeal/

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Re: From Zach
[info]pahsophist
2008-07-01 05:17 pm UTC (link)
Good post, Zach. :) Thanks for the link.

(Reply to this) (Parent)

I support young people in this cause
(Anonymous)
2008-07-01 10:48 pm UTC (link)
First time reader, middle-aged Aspie. All I can say is, GROW! GROW!! We need you young ones desperately, and more older people need to start talking. A lot of people my age with ASDs have been just demolished by people saying we are retarded or won't ever be able to learn. I said to someone recently that if we let another generation of little kids slip through the cracks, we may very well lose the cure for cancer, colonization of space, who knows? The ones who came before had brilliant minds and so much to give, and their treatment has made them bitter. Many became self-employed and insular as a survival mechanism. I'm trying to do what I can to increase awareness and keep little ones from being used for profit. I remember being small, and you young pioneers are doing work that will change the future for good. Don't be discouraged, and keep it up! :)

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Re: I support young people in this cause
[info]pahsophist
2008-07-02 12:09 am UTC (link)
I would love, like you say, for older individuals to come out of their closets and fight as well along with us younger folk.

But, I mean, how many auties are running around this world, especially in older generations, who have never even HEARD of Asperger's or HFA? I think there's a lot. I'm pretty sure before his death, my father had never heard of "Asperger's Syndrome" despite that he was CLASSIC.

I think those who have gotten into computers and the internet have been the lucky ones, because that's where many people have become acquainted with the spectrum and realized "Oh my god, I'm autistic!". But there's many in slightly older generations who avoid computers like the plague and really miss out.

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